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Hypophosphatasia HPP and Me
Melanie Williams
https://melaniedwilliams.wixsite.com/mysite
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I am Number 17
Doing my utomost to raise the profile of rare conditions. Some doctors only see 1 case of rare disease a year, which is why this year...
Melanie Williams
Feb 9, 2022
1 min read
Itchy, itchy and new challenges ahead
The last week has seen site reactions reduce in size but they are still extremely itchy and driving me to distraction! In fact I am up...
Melanie Williams
Nov 27, 2019
2 min read
Day 3 on Asfotase Alfa (Strensiq)
Can't believe it. I went to bed at 10.00pm and slept util 9.45am! Didn't get up once in the night - this is unheard of. I had to rush...
Melanie Williams
Oct 9, 2019
2 min read
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