Hypophosphatasia HPP and Me

“ Every day with HPP makes 20 feet feel like 20 miles”.

Did you know, 1 in 17 people in the UK will be affected by a rare disease at some point in their lives?

The piece of art below was created by me in #encaustic wax is inspired by my experiences of living with a rare disease called...

Today I travel to Sheffield to visit my Metabolic Specialist, Jennie Walsh. It’s a long journey from Wales but I am so grateful to be looke