Hypophosphatasia HPP and Me

Doing my utomost to raise the profile of rare conditions. Some doctors only see 1 case of rare disease a year, which is why this year...

“ Every day with HPP makes 20 feet feel like 20 miles”.

'Metabolic Support UK' were our advocate during the initial stages of getting 'Asfotase Alfa' approved via the Managed Access Agreement.

At age 60 and one day I have been approved for 'Strensig'. I have had symptoms since birth but only received my diagnosis at 51, after year

I have lived my life with a very rare condition called Hypophosphatasia.

As a baby I wasn’t able to sit up without propping until I was about a year old. The hospital put me into traction and used physiotherapy...