Hypophosphatasia HPP and Me

The piece of art below was created by me in #encaustic wax is inspired by my experiences of living with a rare disease called...

Real gnawing aching that has needed some serious pain relief and heat and ice.

This last week on Strensiq has been challenging. Not only have I been exhausted for the whole time the injection site reactions have really

As a baby I wasn’t able to sit up without propping until I was about a year old. The hospital put me into traction and used physiotherapy...