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Hypophosphatasia HPP and Me
Melanie Williams
https://melaniedwilliams.wixsite.com/mysite
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Day 3 on Asfotase Alfa (Strensiq)
Can't believe it. I went to bed at 10.00pm and slept util 9.45am! Didn't get up once in the night - this is unheard of. I had to rush...
Melanie Williams
Oct 9, 2019
2 min read
Strensiq is in my Pantry!
I was so emotional when the package arrived I could hardly sign for it. Mixed emotions of excitement and disbelief that I am so lucky to be
Melanie Williams
Oct 1, 2019
1 min read
Good News: Managed Access Agreement UK (NICE) Asfotase Alfa Strensiq
At age 60 and one day I have been approved for 'Strensig'. I have had symptoms since birth but only received my diagnosis at 51, after year
Melanie Williams
Aug 20, 2019
5 min read
Feeling Grateful
Just keeping you posted on my road to accessing Strensiq as an adult with childhood onset HPP in the UK. I went to Sheffield Northern...
Melanie Williams
Jul 5, 2019
1 min read
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