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Feeling Grateful

  • Melanie Williams
  • Jul 5, 2019
  • 1 min read

Just keeping you posted on my road to accessing Strensiq as an adult with childhood onset HPP in the UK. I went to Sheffield Northern Hospital yesterday to have all my baseline tests before starting on Strensiq. This involved a 6 minute walking assessment to see the distance covered, weight and height, blood tests, signing consent forms and receiving information packs. I now wait to hear from the MAA (Managed Access Agreement) Health Care Team.


 
 
 

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© melanie williams

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