Hypophosphatasia HPP and Me

Today was my final day with Wendy. All was going well. I drew down the medication and then tried to remove the needle ready to attach the...

Slept well once again but not for so long. By this morning I had very low grade slightly raised red patches on my first two injection...

Can't believe it. I went to bed at 10.00pm and slept util 9.45am! Didn't get up once in the night - this is unheard of. I had to rush...

I slept extremely well last night as I was much relieved after the training yesterday and then doing the injection myself. Today we ran...

Well last night I just couldn't face going to bed as I was pretty wound up about the events of today. Thoughts running through my mind...

I was so emotional when the package arrived I could hardly sign for it. Mixed emotions of excitement and disbelief that I am so lucky to be

At age 60 and one day I have been approved for 'Strensig'. I have had symptoms since birth but only received my diagnosis at 51, after year

Just keeping you posted on my road to accessing Strensiq as an adult with childhood onset HPP in the UK. I went to Sheffield Northern...

I have lived my life with a very rare condition called Hypophosphatasia.

As a baby I wasn’t able to sit up without propping until I was about a year old. The hospital put me into traction and used physiotherapy...