Hypophosphatasia HPP and Me

“ Every day with HPP makes 20 feet feel like 20 miles”.

First things first. Amazing. Suddenly my injection site reactions are much improved. Can't believe it after three months of severe...

Today I travel to Sheffield to visit my Metabolic Specialist, Jennie Walsh. It’s a long journey from Wales but I am so grateful to be looke

My feet have given me problems since infancy but by now the tendons in my feet are degenerating

The last week has seen site reactions reduce in size but they are still extremely itchy and driving me to distraction! In fact I am up...

Real gnawing aching that has needed some serious pain relief and heat and ice.

The first month is up and it has been quite challenging. Initially I was pretty stressed about the process of injecting and how I would...

Wow we had a great time on holiday but I am now totally whacked! It was a great joy to see both our grown up children and grandchildren...

All the injection sites are reacting within one day now.

This last week on Strensiq has been challenging. Not only have I been exhausted for the whole time the injection site reactions have really

Today was my final day with Wendy. All was going well. I drew down the medication and then tried to remove the needle ready to attach the...

I slept extremely well last night as I was much relieved after the training yesterday and then doing the injection myself. Today we ran...

Well last night I just couldn't face going to bed as I was pretty wound up about the events of today. Thoughts running through my mind...